Developing a framework identifying governance features for genetic wellness programs that mitigate privacy and discrimination risks-Transfer grant

This project will explore the emerging practice of including genetic testing in corporate wellness programs (genetic wellness programs--GWPs) and identify key governance features to mitigate privacy and discrimination risks and ensure stakeholder trust. The researchers will produce three white papers covering the state of the GWP marketplace; the health and cost evidence for GWPs; and a review of applicable federal, state, and local laws and regulations. They will also conduct a survey of employee attitudes toward workplace genetic testing and a field study to identify GWP governance structures, policies, practices, and relationships that shape how employee data are handled, shared, and safeguarded. Results will be shared via white papers, articles, and presentations. This is a transfer grant.