Achieving a Representative Sample of Asian Americans in Biomedical Research Through Community-Based Approaches: Comparing Demographic Data in the All of Us Research Program With the American Community Survey

Fornessa T. Randal; Paula Lozano; Siya Qi; Chieko Maene; Sameep Shah; Yicklun Mo; Francis Ratsimbazafy; Eric Boerwinkle; Mine Cicek; Cheryl R. Clark; Elizabeth Cohn; Kelly Gebo; Roxana Loperena; Kelsey Mayo; Stephen Mockrin; Lucila Ohno-Machado; Sheri Schully; Andrea H. Ramirez; Briseis Aschebrook-Kilfoy; Habibul Ahsan; Helen Lam; Karen E. Kim

doi:10.1177/10436596221130796

Achieving a Representative Sample of Asian Americans in Biomedical Research Through Community-Based Approaches: Comparing Demographic Data in the All of Us Research Program With the American Community Survey

Fornessa T. Randal, Paula Lozano, Siya Qi, Chieko Maene, Sameep Shah, Yicklun Mo, Francis Ratsimbazafy, Eric Boerwinkle, Mine Cicek, Cheryl R. Clark, Elizabeth Cohn, Kelly Gebo, Roxana Loperena, Kelsey Mayo, Stephen Mockrin, Lucila Ohno-Machado, Sheri Schully, Andrea H. Ramirez, Briseis Aschebrook-Kilfoy, Habibul AhsanHelen Lam, Karen E. Kim

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6 Scopus citations

Abstract

Background: Underrepresented persons are often not included in biomedical research. It is unknown if the general Asian American population is being represented in All of Us. The purpose of this study was to compare the Asian demographic data in the All of Us cohort with the Asian nationally representative data from the American Community Survey. Method: Demographic characteristics and health literacy of Asians in All of Us were examined. Findings were qualitatively compared with the Asian data in the 2019 American Community Survey 1-year estimate. Results: Compared with the national composition of Asians, less All of Us participants were born outside the United States (64% vs 79%), were younger, and had higher levels of education (76% vs 52%). Over 60% of All of Us participants reported high levels of health literacy. Conclusion: This study had implications for the development of strategies that ensure diverse populations are represented in biomedical research.

Original language	English (US)
Pages (from-to)	59-67
Number of pages	9
Journal	Journal of Transcultural Nursing
Volume	34
Issue number	1
DOIs	https://doi.org/10.1177/10436596221130796
State	Published - Jan 2023

All Science Journal Classification (ASJC) codes

General Nursing

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Randal, F. T., Lozano, P., Qi, S., Maene, C., Shah, S., Mo, Y., Ratsimbazafy, F., Boerwinkle, E., Cicek, M., Clark, C. R., Cohn, E., Gebo, K., Loperena, R., Mayo, K., Mockrin, S., Ohno-Machado, L., Schully, S., Ramirez, A. H., Aschebrook-Kilfoy, B., ... Kim, K. E. (2023). Achieving a Representative Sample of Asian Americans in Biomedical Research Through Community-Based Approaches: Comparing Demographic Data in the All of Us Research Program With the American Community Survey. Journal of Transcultural Nursing, 34(1), 59-67. https://doi.org/10.1177/10436596221130796

@article{e016151b8b6748839b8bb836db31aae2,

title = "Achieving a Representative Sample of Asian Americans in Biomedical Research Through Community-Based Approaches: Comparing Demographic Data in the All of Us Research Program With the American Community Survey",

abstract = "Background: Underrepresented persons are often not included in biomedical research. It is unknown if the general Asian American population is being represented in All of Us. The purpose of this study was to compare the Asian demographic data in the All of Us cohort with the Asian nationally representative data from the American Community Survey. Method: Demographic characteristics and health literacy of Asians in All of Us were examined. Findings were qualitatively compared with the Asian data in the 2019 American Community Survey 1-year estimate. Results: Compared with the national composition of Asians, less All of Us participants were born outside the United States (64\% vs 79\%), were younger, and had higher levels of education (76\% vs 52\%). Over 60\% of All of Us participants reported high levels of health literacy. Conclusion: This study had implications for the development of strategies that ensure diverse populations are represented in biomedical research.",

author = "Randal, \{Fornessa T.\} and Paula Lozano and Siya Qi and Chieko Maene and Sameep Shah and Yicklun Mo and Francis Ratsimbazafy and Eric Boerwinkle and Mine Cicek and Clark, \{Cheryl R.\} and Elizabeth Cohn and Kelly Gebo and Roxana Loperena and Kelsey Mayo and Stephen Mockrin and Lucila Ohno-Machado and Sheri Schully and Ramirez, \{Andrea H.\} and Briseis Aschebrook-Kilfoy and Habibul Ahsan and Helen Lam and Kim, \{Karen E.\}",

note = "Publisher Copyright: {\textcopyright} The Author(s) 2022.",

year = "2023",

month = jan,

doi = "10.1177/10436596221130796",

language = "English (US)",

volume = "34",

pages = "59--67",

journal = "Journal of Transcultural Nursing",

issn = "1043-6596",

publisher = "SAGE Publications Inc.",

number = "1",

}

Randal, FT, Lozano, P, Qi, S, Maene, C, Shah, S, Mo, Y, Ratsimbazafy, F, Boerwinkle, E, Cicek, M, Clark, CR, Cohn, E, Gebo, K, Loperena, R, Mayo, K, Mockrin, S, Ohno-Machado, L, Schully, S, Ramirez, AH, Aschebrook-Kilfoy, B, Ahsan, H, Lam, H & Kim, KE 2023, 'Achieving a Representative Sample of Asian Americans in Biomedical Research Through Community-Based Approaches: Comparing Demographic Data in the All of Us Research Program With the American Community Survey', Journal of Transcultural Nursing, vol. 34, no. 1, pp. 59-67. https://doi.org/10.1177/10436596221130796

Achieving a Representative Sample of Asian Americans in Biomedical Research Through Community-Based Approaches: Comparing Demographic Data in the All of Us Research Program With the American Community Survey. / Randal, Fornessa T.; Lozano, Paula; Qi, Siya et al.
In: Journal of Transcultural Nursing, Vol. 34, No. 1, 01.2023, p. 59-67.

Research output: Contribution to journal › Article › peer-review

TY - JOUR

T1 - Achieving a Representative Sample of Asian Americans in Biomedical Research Through Community-Based Approaches

T2 - Comparing Demographic Data in the All of Us Research Program With the American Community Survey

AU - Randal, Fornessa T.

AU - Lozano, Paula

AU - Qi, Siya

AU - Maene, Chieko

AU - Shah, Sameep

AU - Mo, Yicklun

AU - Ratsimbazafy, Francis

AU - Boerwinkle, Eric

AU - Cicek, Mine

AU - Clark, Cheryl R.

AU - Cohn, Elizabeth

AU - Gebo, Kelly

AU - Loperena, Roxana

AU - Mayo, Kelsey

AU - Mockrin, Stephen

AU - Ohno-Machado, Lucila

AU - Schully, Sheri

AU - Ramirez, Andrea H.

AU - Aschebrook-Kilfoy, Briseis

AU - Ahsan, Habibul

AU - Lam, Helen

AU - Kim, Karen E.

PY - 2023/1

Y1 - 2023/1

N2 - Background: Underrepresented persons are often not included in biomedical research. It is unknown if the general Asian American population is being represented in All of Us. The purpose of this study was to compare the Asian demographic data in the All of Us cohort with the Asian nationally representative data from the American Community Survey. Method: Demographic characteristics and health literacy of Asians in All of Us were examined. Findings were qualitatively compared with the Asian data in the 2019 American Community Survey 1-year estimate. Results: Compared with the national composition of Asians, less All of Us participants were born outside the United States (64% vs 79%), were younger, and had higher levels of education (76% vs 52%). Over 60% of All of Us participants reported high levels of health literacy. Conclusion: This study had implications for the development of strategies that ensure diverse populations are represented in biomedical research.

AB - Background: Underrepresented persons are often not included in biomedical research. It is unknown if the general Asian American population is being represented in All of Us. The purpose of this study was to compare the Asian demographic data in the All of Us cohort with the Asian nationally representative data from the American Community Survey. Method: Demographic characteristics and health literacy of Asians in All of Us were examined. Findings were qualitatively compared with the Asian data in the 2019 American Community Survey 1-year estimate. Results: Compared with the national composition of Asians, less All of Us participants were born outside the United States (64% vs 79%), were younger, and had higher levels of education (76% vs 52%). Over 60% of All of Us participants reported high levels of health literacy. Conclusion: This study had implications for the development of strategies that ensure diverse populations are represented in biomedical research.

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U2 - 10.1177/10436596221130796

DO - 10.1177/10436596221130796

M3 - Article

C2 - 36398985

AN - SCOPUS:85142288838

SN - 1043-6596

VL - 34

SP - 59

EP - 67

JO - Journal of Transcultural Nursing

JF - Journal of Transcultural Nursing

IS - 1

ER -

Achieving a Representative Sample of Asian Americans in Biomedical Research Through Community-Based Approaches: Comparing Demographic Data in the All of Us Research Program With the American Community Survey

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