Abstract
Background: There is a shortage of health data for Asian American (AA) populations. This shortfall may be improved through the involvement of AA-serving community-based organizations (CBOs). Objectives: This study assesses the feasibility of and interest among CBOs in creating a AA community-based data registry. Methods: Leaders of CBOs were interviewed to assess their current data collection framework and their attitudes towards a shared data registry. Results: Qualitative analysis shows CBOs are active in data collection, find data to be instrumental to their mission, and are interested in contributing to a broader data registry. Discussion: The inclusion of CBOs in large-scale survey efforts may indeed yield more valuable data regarding specific AA subpopulations relative to that which is currently collected by national survey efforts. Such a partnership would be beneficial to CBOs as well, as data collection challenges could be alleviated by the creation of a uniform data registry. [ABSTRACT FROM AUTHOR]
| Original language | English (US) |
|---|---|
| Pages (from-to) | 1-13 |
| Number of pages | 13 |
| Journal | Journal of Health Disparities Research & Practice |
| Volume | 14 |
| Issue number | 1 |
| State | Published - 2021 |
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