@article{2eb177f0ea9c4385af272517e42914c9,
title = "Ankle bracing practices in ambulatory, corticosteroid-naive boys with Duchenne muscular dystrophy",
abstract = "Introduction: Loss of ambulation in Duchenne muscular dystrophy presages scoliosis, respiratory failure, and death. Strategies to maintain ankle range of motion are employed, but little evidence exists to support these approaches and limited information is available concerning current practice. Methods: In this study we assessed baseline bracing data from 187 boys participating in a multicenter, international clinical trial. Results: Ankle-foot orthoses (AFOs) were recommended for 54% of the boys, with nighttime static AFOs and nighttime dynamic AFOs utilized in 94% and 6% of these boys, respectively. Daytime static AFOs were recommended for 3 boys. Compliance with bracing recommendations was 54% for nighttime static braces and 67% for nighttime dynamic braces. Discussion: The basis for the variation in recommended AFO use is unknown and requires further study. Long-term follow-up of boys may permit assessment of the effects of AFO use.",
author = "{The Muscle Study Group and TREAT-NMD} and Victoria Kern and Matthew Wicklund and Anne Haulman and McDermott, {Michael P.} and Martens, {William B.} and Griggs, {Robert C.} and Ashutosh Kumar",
note = "Funding Information: The authors acknowledge the patient and family organizations, including Action Duchenne, Muscular Dystrophy UK, Muscular Dystrophy Canada, and the Benni & Co/Parent Project, for their promotion of our study. The FOR-DMD Steering Committee and the study site investigators are members of the Muscle Study Group. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health. Funding Information: The basis for the variation in recommended AFO use is unknown and requires further study. Long‐term follow‐up of boys may permit assessment of the effects of AFO use. Funding information National Institute of Neurological Disorders and Stroke of the National Institutes of Health, Grant/Award Numbers: U01NS061795, U01NS061799; PTC Therapeutics; Telethon Italy; Muscular Dystrophy Association; Parent Project Muscular Dystrophy Publisher Copyright: {\textcopyright} 2019 Wiley Periodicals, Inc.",
year = "2020",
month = jan,
day = "1",
doi = "10.1002/mus.26727",
language = "English (US)",
volume = "61",
pages = "52--57",
journal = "Muscle and Nerve",
issn = "0148-639X",
publisher = "John Wiley and Sons Inc.",
number = "1",
}