Ankle bracing practices in ambulatory, corticosteroid-naive boys with Duchenne muscular dystrophy

The Muscle Study Group and TREAT-NMD

doi:10.1002/mus.26727

Ankle bracing practices in ambulatory, corticosteroid-naive boys with Duchenne muscular dystrophy

The Muscle Study Group and TREAT-NMD

Research output: Contribution to journal › Article › peer-review

2 Scopus citations

Abstract

Introduction: Loss of ambulation in Duchenne muscular dystrophy presages scoliosis, respiratory failure, and death. Strategies to maintain ankle range of motion are employed, but little evidence exists to support these approaches and limited information is available concerning current practice. Methods: In this study we assessed baseline bracing data from 187 boys participating in a multicenter, international clinical trial. Results: Ankle-foot orthoses (AFOs) were recommended for 54% of the boys, with nighttime static AFOs and nighttime dynamic AFOs utilized in 94% and 6% of these boys, respectively. Daytime static AFOs were recommended for 3 boys. Compliance with bracing recommendations was 54% for nighttime static braces and 67% for nighttime dynamic braces. Discussion: The basis for the variation in recommended AFO use is unknown and requires further study. Long-term follow-up of boys may permit assessment of the effects of AFO use.

Original language	English (US)
Pages (from-to)	52-57
Number of pages	6
Journal	Muscle and Nerve
Volume	61
Issue number	1
DOIs	https://doi.org/10.1002/mus.26727
State	Published - Jan 1 2020

All Science Journal Classification (ASJC) codes

Physiology
Clinical Neurology
Cellular and Molecular Neuroscience
Physiology (medical)

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10.1002/mus.26727

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title = "Ankle bracing practices in ambulatory, corticosteroid-naive boys with Duchenne muscular dystrophy",

abstract = "Introduction: Loss of ambulation in Duchenne muscular dystrophy presages scoliosis, respiratory failure, and death. Strategies to maintain ankle range of motion are employed, but little evidence exists to support these approaches and limited information is available concerning current practice. Methods: In this study we assessed baseline bracing data from 187 boys participating in a multicenter, international clinical trial. Results: Ankle-foot orthoses (AFOs) were recommended for 54% of the boys, with nighttime static AFOs and nighttime dynamic AFOs utilized in 94% and 6% of these boys, respectively. Daytime static AFOs were recommended for 3 boys. Compliance with bracing recommendations was 54% for nighttime static braces and 67% for nighttime dynamic braces. Discussion: The basis for the variation in recommended AFO use is unknown and requires further study. Long-term follow-up of boys may permit assessment of the effects of AFO use.",

author = "{The Muscle Study Group and TREAT-NMD} and Victoria Kern and Matthew Wicklund and Anne Haulman and McDermott, {Michael P.} and Martens, {William B.} and Griggs, {Robert C.} and Ashutosh Kumar",

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year = "2020",

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doi = "10.1002/mus.26727",

language = "English (US)",

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journal = "Muscle and Nerve",

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TY - JOUR

T1 - Ankle bracing practices in ambulatory, corticosteroid-naive boys with Duchenne muscular dystrophy

AU - The Muscle Study Group and TREAT-NMD

AU - Kern, Victoria

AU - Wicklund, Matthew

AU - Haulman, Anne

AU - McDermott, Michael P.

AU - Martens, William B.

AU - Griggs, Robert C.

AU - Kumar, Ashutosh

PY - 2020/1/1

Y1 - 2020/1/1

N2 - Introduction: Loss of ambulation in Duchenne muscular dystrophy presages scoliosis, respiratory failure, and death. Strategies to maintain ankle range of motion are employed, but little evidence exists to support these approaches and limited information is available concerning current practice. Methods: In this study we assessed baseline bracing data from 187 boys participating in a multicenter, international clinical trial. Results: Ankle-foot orthoses (AFOs) were recommended for 54% of the boys, with nighttime static AFOs and nighttime dynamic AFOs utilized in 94% and 6% of these boys, respectively. Daytime static AFOs were recommended for 3 boys. Compliance with bracing recommendations was 54% for nighttime static braces and 67% for nighttime dynamic braces. Discussion: The basis for the variation in recommended AFO use is unknown and requires further study. Long-term follow-up of boys may permit assessment of the effects of AFO use.

AB - Introduction: Loss of ambulation in Duchenne muscular dystrophy presages scoliosis, respiratory failure, and death. Strategies to maintain ankle range of motion are employed, but little evidence exists to support these approaches and limited information is available concerning current practice. Methods: In this study we assessed baseline bracing data from 187 boys participating in a multicenter, international clinical trial. Results: Ankle-foot orthoses (AFOs) were recommended for 54% of the boys, with nighttime static AFOs and nighttime dynamic AFOs utilized in 94% and 6% of these boys, respectively. Daytime static AFOs were recommended for 3 boys. Compliance with bracing recommendations was 54% for nighttime static braces and 67% for nighttime dynamic braces. Discussion: The basis for the variation in recommended AFO use is unknown and requires further study. Long-term follow-up of boys may permit assessment of the effects of AFO use.

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Ankle bracing practices in ambulatory, corticosteroid-naive boys with Duchenne muscular dystrophy

Abstract

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