Doing it right: Caring for and protecting patient information for US organ donors and transplant recipients

Eric D. Perakslis; Stuart J. Knechtle; Brian McCourt; Raymond Lynch; Brianna L. Doby

doi:10.1016/j.patter.2023.100734

Doing it right: Caring for and protecting patient information for US organ donors and transplant recipients

Eric D. Perakslis, Stuart J. Knechtle, Brian McCourt, Raymond Lynch, Brianna L. Doby

Research output: Contribution to journal › Comment/debate › peer-review

2 Scopus citations

Abstract

In the current US organ transplantation system, there are no regulations defining how organ procurement organizations must manage personal data and protect the privacy of donors and recipients. In response to the recent announcement of a major overhaul of the US transplantation system, we describe a practical approach to improving transplant data quality and protecting the autonomy of patients interacting with the system.

Original language	English (US)
Article number	100734
Journal	Patterns
Volume	4
Issue number	4
DOIs	https://doi.org/10.1016/j.patter.2023.100734
State	Published - Apr 14 2023

All Science Journal Classification (ASJC) codes

General Decision Sciences

Access to Document

10.1016/j.patter.2023.100734

Cite this

@article{4f30fc4f423b492bb5a95358583d96e6,

title = "Doing it right: Caring for and protecting patient information for US organ donors and transplant recipients",

abstract = "In the current US organ transplantation system, there are no regulations defining how organ procurement organizations must manage personal data and protect the privacy of donors and recipients. In response to the recent announcement of a major overhaul of the US transplantation system, we describe a practical approach to improving transplant data quality and protecting the autonomy of patients interacting with the system.",

author = "Perakslis, {Eric D.} and Knechtle, {Stuart J.} and Brian McCourt and Raymond Lynch and Doby, {Brianna L.}",

note = "Funding Information: Brianna L. Doby reports consulting or advisory relationships with Arkansas Regional Organ Recovery Agency, LifeConnection of Ohio, and Organ Alliance, Inc. The remaining authors declare no competing interests. Publisher Copyright: {\textcopyright} 2023 The Author(s)",

year = "2023",

month = apr,

day = "14",

doi = "10.1016/j.patter.2023.100734",

language = "English (US)",

volume = "4",

journal = "Patterns",

issn = "2666-3899",

publisher = "Cell Press",

number = "4",

}

TY - JOUR

T1 - Doing it right

T2 - Caring for and protecting patient information for US organ donors and transplant recipients

AU - Perakslis, Eric D.

AU - Knechtle, Stuart J.

AU - McCourt, Brian

AU - Lynch, Raymond

AU - Doby, Brianna L.

N1 - Funding Information: Brianna L. Doby reports consulting or advisory relationships with Arkansas Regional Organ Recovery Agency, LifeConnection of Ohio, and Organ Alliance, Inc. The remaining authors declare no competing interests. Publisher Copyright: © 2023 The Author(s)

PY - 2023/4/14

Y1 - 2023/4/14

N2 - In the current US organ transplantation system, there are no regulations defining how organ procurement organizations must manage personal data and protect the privacy of donors and recipients. In response to the recent announcement of a major overhaul of the US transplantation system, we describe a practical approach to improving transplant data quality and protecting the autonomy of patients interacting with the system.

AB - In the current US organ transplantation system, there are no regulations defining how organ procurement organizations must manage personal data and protect the privacy of donors and recipients. In response to the recent announcement of a major overhaul of the US transplantation system, we describe a practical approach to improving transplant data quality and protecting the autonomy of patients interacting with the system.

UR - http://www.scopus.com/inward/record.url?scp=85152138438&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85152138438&partnerID=8YFLogxK

U2 - 10.1016/j.patter.2023.100734

DO - 10.1016/j.patter.2023.100734

M3 - Comment/debate

C2 - 37123437

AN - SCOPUS:85152138438

SN - 2666-3899

VL - 4

JO - Patterns

JF - Patterns

IS - 4

M1 - 100734

ER -

Doing it right: Caring for and protecting patient information for US organ donors and transplant recipients

Abstract

All Science Journal Classification (ASJC) codes

Access to Document

Other files and links

Fingerprint

Cite this