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Establishing a high-risk neuroblastoma cohort using the pediatric health information system database

  • Ami V. Desai
  • , Marko Kavcic
  • , Yuan Shung Huang
  • , Nicole Herbst
  • , Brian T. Fisher
  • , Alix E. Seif
  • , Yimei Li
  • , Sean Hennessy
  • , Richard Aplenc
  • , Rochelle Bagatell

Research output: Contribution to journal › Article › peer-review

Abstract

International Classification of Diseases, 9th Revision (ICD-9) code(s) for neuroblastoma do not exist, preventing identification of these patients in administrative databases. To overcome this challenge, a three-step algorithm, using ICD-9 codes, exclusion criteria, and manual review of chemotherapy billing data, was utilized to assemble a high-risk neuroblastoma cohort (n=952) from the Pediatric Health Information System (PHIS) Database and validated at a single institution [sensitivity 89.1%; positive predictive value (PPV) 96.1%]. This cohort provides a data source for future comparative effectiveness and clinical epidemiology studies in high-risk neuroblastoma patients. Pediatr Blood Cancer 2014;61:1129-1131.

Original languageEnglish (US)
Pages (from-to)1129-1131
Number of pages3
JournalPediatric Blood and Cancer
Volume61
Issue number6
DOIs
StatePublished - Jun 2014

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

  1. SDG 3 - Good Health and Well-being
    SDG 3 Good Health and Well-being

All Science Journal Classification (ASJC) codes

  • Pediatrics, Perinatology, and Child Health
  • Hematology
  • Oncology

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