TY - JOUR
T1 - Genetic testing and employer-sponsored wellness programs
T2 - An overview of current vendors, products, and practices
AU - McDonald, Whitney S.
AU - Wagner, Jennifer K.
AU - Deverka, Patricia A.
AU - Woods, Laura A.
AU - Peterson, Josh F.
AU - Williams, Marc S.
N1 - Funding Information:
This study was supported by National Institutes of Health (NIH) National Human Genome Research Institute (NHGRI) Award No. R01HG009694‐03S1 to Vanderbilt University (as prime) and Geisinger Clinic as a subaward.
Funding Information:
This study was supported by National Institutes of Health (NIH) National Human Genome Research Institute (NHGRI) Award No. R01HG009694-03S1 to Vanderbilt University (as prime) and Geisinger Clinic as a subaward. This research was funded by the National Human Genome Research Institute (NHGRI) Award No. R01HG009694-03S1 to Vanderbilt University (as prime) and Geisinger Clinic as a subaward. The content of this article is solely the authors? responsibility and might not represent the views of the authors? funding sources, employers, or any other person or entity. The protocol for this research was submitted to the Geisinger Institutional Review Board and determined not to be human subjects research (IRB #2019-1117) on November 26, 2019.
Funding Information:
This research was funded by the National Human Genome Research Institute (NHGRI) Award No. R01HG009694‐03S1 to Vanderbilt University (as prime) and Geisinger Clinic as a subaward. The content of this article is solely the authors’ responsibility and might not represent the views of the authors’ funding sources, employers, or any other person or entity. The protocol for this research was submitted to the Geisinger Institutional Review Board and determined not to be human subjects research (IRB #2019‐1117) on November 26, 2019.
Publisher Copyright:
© 2020 The Authors. Molecular Genetics & Genomic Medicine published by Wiley Periodicals LLC.
PY - 2020/10/1
Y1 - 2020/10/1
N2 - Background: Employer-sponsored corporate wellness programs have spread despite limited evidence of effectiveness in improving health or reducing costs. Some programs have offered genetic testing as a benefit to employees, but little is known about this practice. Methods: In December 2019, we conducted a systematic Google search to identify vendors offering corporate wellness programs involving genetics. We performed qualitative content analysis of publicly available information about the vendors’ products and practices disclosed on their websites. Results: Fifteen vendors were identified. Details regarding genetic testing offered within wellness programs were difficult to decipher from vendors’ websites, including which specific products were included. No evidence was provided to support vendor claimed improvements in employer costs, employee health, and job performance. Only half offered health and genetic counseling services. Most vendors were ambiguous regarding data sharing. Disclaimer language was included in vendors’ stated risks and limitations, ostensibly to avoid oversight and liability. Conclusion: We found a lack of transparency among corporate wellness program vendors, underscoring challenges that stakeholders encounter when trying to assess (a) how such programs are using genetics, (b) the potential benefits of such applications, and (c) the adequacy of protections to ensure scientific evidence support any health claims and genetic nondiscrimination.
AB - Background: Employer-sponsored corporate wellness programs have spread despite limited evidence of effectiveness in improving health or reducing costs. Some programs have offered genetic testing as a benefit to employees, but little is known about this practice. Methods: In December 2019, we conducted a systematic Google search to identify vendors offering corporate wellness programs involving genetics. We performed qualitative content analysis of publicly available information about the vendors’ products and practices disclosed on their websites. Results: Fifteen vendors were identified. Details regarding genetic testing offered within wellness programs were difficult to decipher from vendors’ websites, including which specific products were included. No evidence was provided to support vendor claimed improvements in employer costs, employee health, and job performance. Only half offered health and genetic counseling services. Most vendors were ambiguous regarding data sharing. Disclaimer language was included in vendors’ stated risks and limitations, ostensibly to avoid oversight and liability. Conclusion: We found a lack of transparency among corporate wellness program vendors, underscoring challenges that stakeholders encounter when trying to assess (a) how such programs are using genetics, (b) the potential benefits of such applications, and (c) the adequacy of protections to ensure scientific evidence support any health claims and genetic nondiscrimination.
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U2 - 10.1002/mgg3.1414
DO - 10.1002/mgg3.1414
M3 - Article
C2 - 32715662
AN - SCOPUS:85088481357
SN - 2324-9269
VL - 8
JO - Molecular Genetics and Genomic Medicine
JF - Molecular Genetics and Genomic Medicine
IS - 10
M1 - e1414
ER -