TY - JOUR
T1 - Home-Based Care Provider Perspectives on Care Refusal during the COVID-19 Pandemic
AU - Inloes, Jennifer B.
AU - Brown, Allyson
AU - Rettell, Zoe
AU - Fick, Donna M.
AU - Bell, Sue Anne
N1 - Funding Information:
From School of Nursing (J.B.I., Z.R., S.A.B.), School of Public Health (A.B.), University of Michigan, Ann Arbor, Michigan; and The Ross and Carol Nese College of Nursing, Pennsylvania State University, University Park, and College of Medicine, Pennsylvania State University, Hershey, Pennsylvania (D.M.F.). Disclosure: The authors have disclosed no potential conflicts of interest, financial or otherwise. Dr. Fick was not involved in the peer review or decision-making process for this manuscript. Support: Research in this publication was supported by the National Institute on Aging of the National Institutes of Health under award number K23AG059890 (S.A.B., PI). Address correspondence to Jennifer B. Inloes, BSN, RN, School of Nursing, University of Michigan, 400 North Ingalls Building, Ann Arbor, MI 48109; email: [email protected]. Received: March 27, 2022. Accepted: September 9, 2022. doi:10.3928/00989134-20221206-02
Publisher Copyright:
Copyright © SLACK Incorporated.
PY - 2023/1
Y1 - 2023/1
N2 - Acute and chronic disease management continues to shift toward a health care in the home model, yet literature discussing continuity of home-based care services during public health emergencies, such as infectious disease pandemics, is scant. In the current study, we used semi-structured telephone interviews with 27 home-based care providers (HBCPs) from Medicare-certified home health care agencies located in eight U.S. counties to explore older adults’ decision making around home-based care service continuation during the coronavirus disease 2019 (COVID-19) pandemic. Four themes emerged, including two related to older adults’ decision making around refusal of in-home care and two related to HBCPs’ responses to care refusals. Fear of COVID-19 infection motivated older adults to make care-related decisions that were incongruent with their health needs, including refusal of care in the home, despite receiving education from HBCPs. These data highlight a need for tools to help HBCPs better support patients through decision-making processes about care continuation during COVID-19 and future infectious disease pandemics.
AB - Acute and chronic disease management continues to shift toward a health care in the home model, yet literature discussing continuity of home-based care services during public health emergencies, such as infectious disease pandemics, is scant. In the current study, we used semi-structured telephone interviews with 27 home-based care providers (HBCPs) from Medicare-certified home health care agencies located in eight U.S. counties to explore older adults’ decision making around home-based care service continuation during the coronavirus disease 2019 (COVID-19) pandemic. Four themes emerged, including two related to older adults’ decision making around refusal of in-home care and two related to HBCPs’ responses to care refusals. Fear of COVID-19 infection motivated older adults to make care-related decisions that were incongruent with their health needs, including refusal of care in the home, despite receiving education from HBCPs. These data highlight a need for tools to help HBCPs better support patients through decision-making processes about care continuation during COVID-19 and future infectious disease pandemics.
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U2 - 10.3928/00989134-20221206-02
DO - 10.3928/00989134-20221206-02
M3 - Article
C2 - 36594910
AN - SCOPUS:85145429353
SN - 0098-9134
VL - 49
SP - 35
EP - 41
JO - Journal of gerontological nursing
JF - Journal of gerontological nursing
IS - 1
ER -