TY - JOUR
T1 - Improving Diabetes Care
T2 - Should We Reconceptualize Diabetes Burnout?
AU - Abdoli, Samereh
AU - Jones, Danielle Hessler
AU - Vora, Amit
AU - Stuckey, Heather
N1 - Funding Information:
This study was approved by the Institutional Review Board of the University of Tennessee’s Committee on the Rights of Human Subjects in Research (No. 17-03797-XM). For ethical consideration, the study adopted Berry’s open source research model for internet research considering blogs as an open data source. The model suggests that bloggers, as part of the internet users’ community, perceive the potential risks of online communication and the potential of using narratives for other purposes.33As all data for this study were derived from publicly available blogs and not password protected, informed consent was not needed from the bloggers; however, the bloggers were notified that their blogs were part of this study by email notification or by the author (S.A.) posting a comment on the blog if no email address was provided. No bloggers asked for exclusion from the study.
Publisher Copyright:
© 2019 The Author(s).
PY - 2019/4/1
Y1 - 2019/4/1
N2 - Purpose: The purpose of this study was to explore and understand the experience of diabetes burnout among people with diabetes (PWD). Methods: A qualitative descriptive analysis of 35 blog narratives published in 21 diabetes blogs from the United States, United Kingdom, and Ireland, written by PWD, provided the basis for this study’s definition of diabetes burnout. Data management (Nvivo 11 Pro) and analysis included 3 phases: immersion, reduction, and interpretation (kappa = 0.91). Results: Findings included 5 main themes that described diabetes burnout: (1) burnout is a “detachment” from diabetes care, (2) the “demanding life” of diabetes leads to burnout, (3) struggling with “perfect” numbers adds to burnout, (4) “life events” are catalysts to burnout, and (5) overcoming burnout is like “climbing out of a difficult hole.” Conclusions: Analysis of blog narratives provided unique insights into the concept of diabetes burnout. Five themes were identified that ranged from diabetes care detachment to difficulties in overcoming diabetes. These data provide an increased understanding of diabetes burnout and the factors that may contribute to diabetes burnout. To advance the science of diabetes burnout and to improve person-centered diabetes care and quality of life for PWD, further research is needed.
AB - Purpose: The purpose of this study was to explore and understand the experience of diabetes burnout among people with diabetes (PWD). Methods: A qualitative descriptive analysis of 35 blog narratives published in 21 diabetes blogs from the United States, United Kingdom, and Ireland, written by PWD, provided the basis for this study’s definition of diabetes burnout. Data management (Nvivo 11 Pro) and analysis included 3 phases: immersion, reduction, and interpretation (kappa = 0.91). Results: Findings included 5 main themes that described diabetes burnout: (1) burnout is a “detachment” from diabetes care, (2) the “demanding life” of diabetes leads to burnout, (3) struggling with “perfect” numbers adds to burnout, (4) “life events” are catalysts to burnout, and (5) overcoming burnout is like “climbing out of a difficult hole.” Conclusions: Analysis of blog narratives provided unique insights into the concept of diabetes burnout. Five themes were identified that ranged from diabetes care detachment to difficulties in overcoming diabetes. These data provide an increased understanding of diabetes burnout and the factors that may contribute to diabetes burnout. To advance the science of diabetes burnout and to improve person-centered diabetes care and quality of life for PWD, further research is needed.
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U2 - 10.1177/0145721719829066
DO - 10.1177/0145721719829066
M3 - Article
C2 - 30739546
AN - SCOPUS:85061617530
SN - 0145-7217
VL - 45
SP - 214
EP - 224
JO - Diabetes Educator
JF - Diabetes Educator
IS - 2
ER -
