TY - JOUR
T1 - Issues and solutions for collecting biological specimen in longitudinal studies
T2 - Experience from the community child health network research network
AU - O’Campo, Patricia
AU - Belue, Rhonda
AU - Borenstein, Heidi
AU - Reed-Vance, Maxine
AU - Lanzi, Robin Gaines
AU - Schafer, Peter
AU - Jones, Loretta
AU - Woolord, Richard
N1 - Publisher Copyright:
© Meharry Medical College.
PY - 2016/2
Y1 - 2016/2
N2 - The inclusion of biomarkers in studies of stress and health outcomes is of growing interest, including for community-based participatory research (CBPR) studies. Yet the perspectives of participants and communities have been infrequently consulted to inform the biomarker collection process. The objective of this paper is to describe the process and outcomes of using CBPR in framing biomarker collection in a study of allostatic load in a maternal and child health population. Through analysis of focus group data, we identify aspects of CBPR that facilitate increased community trust and endorsement related to collecting biological samples, and also provide a community perspective that is often overlooked in the literature. We found that a CBPR approach facilitated greater understanding among community members about the importance of biomarkers, while simultaneously informing the design of a biomarker data collection protocol that was responsive to the desired scope and data collection procedures that reflected community priorities.
AB - The inclusion of biomarkers in studies of stress and health outcomes is of growing interest, including for community-based participatory research (CBPR) studies. Yet the perspectives of participants and communities have been infrequently consulted to inform the biomarker collection process. The objective of this paper is to describe the process and outcomes of using CBPR in framing biomarker collection in a study of allostatic load in a maternal and child health population. Through analysis of focus group data, we identify aspects of CBPR that facilitate increased community trust and endorsement related to collecting biological samples, and also provide a community perspective that is often overlooked in the literature. We found that a CBPR approach facilitated greater understanding among community members about the importance of biomarkers, while simultaneously informing the design of a biomarker data collection protocol that was responsive to the desired scope and data collection procedures that reflected community priorities.
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U2 - 10.1353/hpu.2016.0021
DO - 10.1353/hpu.2016.0021
M3 - Article
AN - SCOPUS:85000542291
SN - 1049-2089
VL - 27
SP - 339
EP - 351
JO - Journal of Health Care for the Poor and Underserved
JF - Journal of Health Care for the Poor and Underserved
IS - 1
ER -