It’s difficult to say no: Development of a parenting booklet about physical activity restrictions and recommendations in pediatric hemophilia

Sarah Bérubé; David Ogez; Jennifer Aramideh; Claudine Amesse; Claude J. Bourque; Claire Longpré; Lorraine Muise; Ariane Levesque; Serge Sultan

doi:10.1177/20551029211039920

It’s difficult to say no: Development of a parenting booklet about physical activity restrictions and recommendations in pediatric hemophilia

Sarah Bérubé, David Ogez, Jennifer Aramideh, Claudine Amesse, Claude J. Bourque, Claire Longpré, Lorraine Muise, Ariane Levesque, Serge Sultan

Department of Pediatrics

Research output: Contribution to journal › Article › peer-review

1 Scopus citations

Abstract

Physical activity restrictions can be particularly difficult for children with hemophilia and their parents, as most children want to engage in the same activities as their friends or siblings. This study aimed to assess parents’ need for a booklet on how to manage physical activity restrictions based on the self-determination theory and gather their suggestions for the booklet’s improvement in a focus group. Data were analyzed using thematic analyses to highlight to what extent the needs of parents were met by the booklet, as well as their suggestions for improvement. A discussion on the methodology of the booklet’s creation is also presented.

Original language	English (US)
Journal	Health Psychology Open
Volume	8
Issue number	2
DOIs	https://doi.org/10.1177/20551029211039920
State	Published - Oct 25 2021

All Science Journal Classification (ASJC) codes

Clinical Psychology
Psychiatry and Mental health

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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10.1177/20551029211039920

Cite this

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title = "It{\textquoteright}s difficult to say no: Development of a parenting booklet about physical activity restrictions and recommendations in pediatric hemophilia",

abstract = "Physical activity restrictions can be particularly difficult for children with hemophilia and their parents, as most children want to engage in the same activities as their friends or siblings. This study aimed to assess parents{\textquoteright} need for a booklet on how to manage physical activity restrictions based on the self-determination theory and gather their suggestions for the booklet{\textquoteright}s improvement in a focus group. Data were analyzed using thematic analyses to highlight to what extent the needs of parents were met by the booklet, as well as their suggestions for improvement. A discussion on the methodology of the booklet{\textquoteright}s creation is also presented.",

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AU - Bourque, Claude J.

AU - Longpré, Claire

AU - Muise, Lorraine

AU - Levesque, Ariane

AU - Sultan, Serge

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It’s difficult to say no: Development of a parenting booklet about physical activity restrictions and recommendations in pediatric hemophilia

Abstract

All Science Journal Classification (ASJC) codes

UN SDGs

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