TY - GEN
T1 - Making healthcare infrastructure work
T2 - 2019 CHI Conference on Human Factors in Computing Systems, CHI 2019
AU - Gui, Xinning
AU - Chen, Yunan
PY - 2019/5/2
Y1 - 2019/5/2
N2 - The U.S. healthcare infrastructure is fragmented with various breakdowns. Patients or caregivers have to rely on their own to overcome barriers and fix breakdowns in order to obtain necessary service, that is, infrastructuring work to make the healthcare infrastructure work for them. So far little attention has been paid to such infrastructuring work in healthcare. We present an interview study of 32 U.S. parents of young children to discuss the work of infrastructuring our participants carry out to deal with breakdowns within the healthcare infrastructure. We report how they repaired unexpected failures happening at the individual level, aligned components at organizational and cross-organizational level, and circumvented infrastructural constraints (e.g., policy and financial ones) that were perceived as ambiguous and demanding. We discuss infrastructuring work in light of the literature on patients’ and caregivers’ work, reflect upon the notion of patient engagement, and explore nuances along several dimensions of infrastructuring work.
AB - The U.S. healthcare infrastructure is fragmented with various breakdowns. Patients or caregivers have to rely on their own to overcome barriers and fix breakdowns in order to obtain necessary service, that is, infrastructuring work to make the healthcare infrastructure work for them. So far little attention has been paid to such infrastructuring work in healthcare. We present an interview study of 32 U.S. parents of young children to discuss the work of infrastructuring our participants carry out to deal with breakdowns within the healthcare infrastructure. We report how they repaired unexpected failures happening at the individual level, aligned components at organizational and cross-organizational level, and circumvented infrastructural constraints (e.g., policy and financial ones) that were perceived as ambiguous and demanding. We discuss infrastructuring work in light of the literature on patients’ and caregivers’ work, reflect upon the notion of patient engagement, and explore nuances along several dimensions of infrastructuring work.
UR - http://www.scopus.com/inward/record.url?scp=85067613426&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85067613426&partnerID=8YFLogxK
U2 - 10.1145/3290605.3300688
DO - 10.1145/3290605.3300688
M3 - Conference contribution
AN - SCOPUS:85067613426
T3 - Conference on Human Factors in Computing Systems - Proceedings
BT - CHI 2019 - Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems
PB - Association for Computing Machinery
Y2 - 4 May 2019 through 9 May 2019
ER -