Navigating Delirium Superimposed on Dementia: Family Care Partners’ Experiences and Needs

PURPOSE: To explore family care partners’ (FCPs) experiences with delirium superimposed on dementia (DSD) and identify their needs and preferences for education, support, and resources. METHOD: A qualitative descriptive design was used. Data from 16 FCPs were collected using demographic surveys and semi-structured interviews, which were conducted via telephone and/or Zoom video conference. Thematic analysis identified key patterns and themes. RESULTS: Five key themes were identified: (1) Caught Off Guard: Emotional Strain and Sudden Shifts in DSD; (2) No Two Days the Same: Adapting to the Shifting Demands of DSD Care; (3) Bridging the Gaps: Navigating Support, Advocacy, and Communication in DSD Care; (4) Stabilizing Strategies: Reassuring Presence, Comfort, and Mobility in DSD Care; and (5) Wanting to Help, Not Knowing How. CONCLUSION: Findings emphasize the need to educate and support FCPs through clinician-led training and community resources to improve caregiving confidence, effectiveness, and dyadic well-being.