TY - JOUR
T1 - PaTH to partnership in stakeholder-engaged research
T2 - A framework for stakeholder engagement in the PaTH to Health Diabetes study
AU - Poger, Jennifer M.
AU - Yeh, Hsin Chieh
AU - Bryce, Cindy L.
AU - Carroll, Jennifer K.
AU - Kong, Lan
AU - Francis, Erica B.
AU - Kraschnewski, Jennifer L.
N1 - Funding Information:
Research reported in this manuscript was funded through a PCORI Award, NEN-1509-32304. PCORI had no role in the design of the study, data collection or interpretation, or writing or approving the finished manuscript. This study was funded through a PCORI Award (PCORI CDRN #1306-04912) for development of the National Patient-Centered Clinical Research Network, known as PCORnet. The authors acknowledge the significant contributions to this study that were provided by collaborating investigators in the NEXT-D2 (Natural Experiments in Translation for Diabetes) Study Two. The authors also acknowledge the participation of our partnering health systems. The project described was partly supported by the National Center for Advancing Translational Sciences, National Institutes of Health, through Grant UL1 TR002014. The content is solely the responsibility of the authors and does not necessarily represent the official views of the NIH. Engagement evaluation data were collected and managed using REDCap electronic data capture tools hosted at the Penn State Milton S. Hershey Medical Center and College of Medicine. We would like to thank our patient partners for their contributions to this manuscript and their unwavering support in our research (Angela Evans, Julie Tice, Cynthia Bradley, Mully Chea, Treva Alston). We would also like to thank our community and primary care provider stakeholders for their contributions to the PaTH to Health: Diabetes study. Finally, we would like to thank Pamela Witt for conducting the patient partner check-in engagement evaluations and Ellie Hogentogler and Abbey Kinard for their marketing and design assistance.
Funding Information:
Research reported in this manuscript was funded through a PCORI Award, NEN-1509-32304. PCORI had no role in the design of the study, data collection or interpretation, or writing or approving the finished manuscript. This study was funded through a PCORI Award ( PCORI CDRN #1306-04912 ) for development of the National Patient-Centered Clinical Research Network, known as PCORnet. The authors acknowledge the significant contributions to this study that were provided by collaborating investigators in the NEXT-D2 (Natural Experiments in Translation for Diabetes) Study Two. The authors also acknowledge the participation of our partnering health systems. The project described was partly supported by the National Center for Advancing Translational Sciences, National Institutes of Health , through Grant UL1 TR002014 . The content is solely the responsibility of the authors and does not necessarily represent the official views of the NIH. Engagement evaluation data were collected and managed using REDCap electronic data capture tools hosted at the Penn State Milton S. Hershey Medical Center and College of Medicine.
Funding Information:
Research reported in this manuscript was funded through a PCORI Award, NEN-1509-32304. PCORI had no role in the design of the study, data collection or interpretation, or writing or approving the finished manuscript. This study was funded through a PCORI Award (PCORI CDRN #1306-04912) for development of the National Patient-Centered Clinical Research Network, known as PCORnet. The authors acknowledge the significant contributions to this study that were provided by collaborating investigators in the NEXT-D2 (Natural Experiments in Translation for Diabetes) Study Two. The authors also acknowledge the participation of our partnering health systems. The project described was partly supported by the National Center for Advancing Translational Sciences, National Institutes of Health, through Grant UL1 TR002014. The content is solely the responsibility of the authors and does not necessarily represent the official views of the NIH. Engagement evaluation data were collected and managed using REDCap electronic data capture tools hosted at the Penn State Milton S. Hershey Medical Center and College of Medicine.
Publisher Copyright:
© 2019 The Authors
PY - 2020/3
Y1 - 2020/3
N2 - Engaging a diverse stakeholder group, including patients, clinicians, policy makers, and leadership from national professional organizations as partners in research supports the pursuit of patient-centered outcomes. Utilizing the Patient-Centered Outcomes Research (PCOR) Engagement Principles and applying adult learning theories to training opportunities can enhance stakeholder-investigator collaborations. Regularly scheduled study meetings with stakeholders can help streamline communication, offer a platform for stakeholder voices to be shared, and increase study productivity. Ongoing engagement evaluations provide an important opportunity to assess engagement activities and improve processes moving forward. Benefits of a robust patient partner and stakeholder body extend beyond the study's objectives and translate into the creation of larger networks where resources are shared and patient-centeredness is enhanced.
AB - Engaging a diverse stakeholder group, including patients, clinicians, policy makers, and leadership from national professional organizations as partners in research supports the pursuit of patient-centered outcomes. Utilizing the Patient-Centered Outcomes Research (PCOR) Engagement Principles and applying adult learning theories to training opportunities can enhance stakeholder-investigator collaborations. Regularly scheduled study meetings with stakeholders can help streamline communication, offer a platform for stakeholder voices to be shared, and increase study productivity. Ongoing engagement evaluations provide an important opportunity to assess engagement activities and improve processes moving forward. Benefits of a robust patient partner and stakeholder body extend beyond the study's objectives and translate into the creation of larger networks where resources are shared and patient-centeredness is enhanced.
UR - http://www.scopus.com/inward/record.url?scp=85065533381&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85065533381&partnerID=8YFLogxK
U2 - 10.1016/j.hjdsi.2019.05.001
DO - 10.1016/j.hjdsi.2019.05.001
M3 - Article
C2 - 31101581
AN - SCOPUS:85065533381
SN - 2213-0764
VL - 8
JO - Healthcare
JF - Healthcare
IS - 1
M1 - 100361
ER -
