TY - JOUR
T1 - Patient and Caregiver Incongruence in Advanced Heart Failure
AU - Kitko, Lisa A.
AU - Hupcey, Judith E.
AU - Pinto, Casey
AU - Palese, Maureen
N1 - Funding Information:
The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This research was funded by the National Institute of Health/National Institute of Nursing Research Grant (1R01NR013419–01). L. Kitko and J. Hupcey are Co-PIs for this grant. M. Palese is a research assistant and project director for this grant. C. Pinto is a research assistant for this grant. All contributors receive financial support indirectly from the grant via the grant funding receiving institution of Pennsylvania State University.
Publisher Copyright:
© 2014, © The Author(s) 2014.
PY - 2015/8/11
Y1 - 2015/8/11
N2 - The important role of caregivers in heart failure (HF) management is well documented, but few studies have explored HF patient–caregiver dyads when dyadic incongruence is evident. The purpose of this study was to determine the prevalence of incongruence between HF patient–caregiver dyads, areas of incongruence, and the impact on individuals in the dyadic relationship. Data were collected as part of a longitudinal qualitative study examining the palliative care needs of HF dyads. Interviews with dyads determined to be incongruent were further analyzed. Of the 100 dyads, 47 were identified as being incongruent. Dyads were found to be incongruent in illness management, health care issues, and end-of-life decisions. Dyads that were incongruent reported more psychosocial issues and distress within the dyad and individually. Further research is needed to determine the impact of incongruence and whether interventions to modify incongruence will lead to improved HF patient and caregiver outcomes and experiences.
AB - The important role of caregivers in heart failure (HF) management is well documented, but few studies have explored HF patient–caregiver dyads when dyadic incongruence is evident. The purpose of this study was to determine the prevalence of incongruence between HF patient–caregiver dyads, areas of incongruence, and the impact on individuals in the dyadic relationship. Data were collected as part of a longitudinal qualitative study examining the palliative care needs of HF dyads. Interviews with dyads determined to be incongruent were further analyzed. Of the 100 dyads, 47 were identified as being incongruent. Dyads were found to be incongruent in illness management, health care issues, and end-of-life decisions. Dyads that were incongruent reported more psychosocial issues and distress within the dyad and individually. Further research is needed to determine the impact of incongruence and whether interventions to modify incongruence will lead to improved HF patient and caregiver outcomes and experiences.
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U2 - 10.1177/1054773814523777
DO - 10.1177/1054773814523777
M3 - Article
C2 - 24599063
AN - SCOPUS:84936860401
SN - 1054-7738
VL - 24
SP - 388
EP - 400
JO - Clinical Nursing Research
JF - Clinical Nursing Research
IS - 4
ER -