TY - JOUR
T1 - Patient perspectives on the treatment burden of injectable medication for hereditary angioedema
AU - Radojicic, Cristine
AU - Riedl, Marc A.
AU - Craig, Timothy J.
AU - Best, Jessica M.
AU - Rosselli, Jinky
AU - Hahn, Rebecca
AU - Banerji, Aleena
N1 - Publisher Copyright:
© 2021, OceanSide Publications, Inc., U.S.A.
PY - 2021/5/1
Y1 - 2021/5/1
N2 - Hereditary angioedema (HAE) is a rare, chronic disease characterized by debilitating swelling episodes in various parts of the body. Patients experience significant burdens related to the symptoms and management of HAE, which can affect their daily lives and reduce their overall quality of life. Prophylactic treatment options have expanded in the past decade to the benefit of patients; however, these therapies require scheduled injections, which can be painful, burdensome, and time consuming. We conducted an online survey of patients with HAE in the USA to better understand their experiences with available prophylactic medications and the associated treatment burdens. Our survey results suggest that most patients are satisfied with their current therapies but desire novel medications with a simpler route of administration and that, although most patients experience significant treatment-related burdens, they learn to cope with these challenges over time.
AB - Hereditary angioedema (HAE) is a rare, chronic disease characterized by debilitating swelling episodes in various parts of the body. Patients experience significant burdens related to the symptoms and management of HAE, which can affect their daily lives and reduce their overall quality of life. Prophylactic treatment options have expanded in the past decade to the benefit of patients; however, these therapies require scheduled injections, which can be painful, burdensome, and time consuming. We conducted an online survey of patients with HAE in the USA to better understand their experiences with available prophylactic medications and the associated treatment burdens. Our survey results suggest that most patients are satisfied with their current therapies but desire novel medications with a simpler route of administration and that, although most patients experience significant treatment-related burdens, they learn to cope with these challenges over time.
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U2 - 10.2500/AAP.2021.42.210025
DO - 10.2500/AAP.2021.42.210025
M3 - Review article
C2 - 33980327
AN - SCOPUS:85105837622
SN - 1088-5412
VL - 42
SP - S4-S10
JO - Allergy and Asthma Proceedings
JF - Allergy and Asthma Proceedings
IS - 3
ER -