Patient perspectives on the treatment burden of injectable medication for hereditary angioedema

Cristine Radojicic, Marc A. Riedl, Timothy J. Craig, Jessica M. Best, Jinky Rosselli, Rebecca Hahn, Aleena Banerji

Research output: Contribution to journalReview articlepeer-review

19 Scopus citations


Hereditary angioedema (HAE) is a rare, chronic disease characterized by debilitating swelling episodes in various parts of the body. Patients experience significant burdens related to the symptoms and management of HAE, which can affect their daily lives and reduce their overall quality of life. Prophylactic treatment options have expanded in the past decade to the benefit of patients; however, these therapies require scheduled injections, which can be painful, burdensome, and time consuming. We conducted an online survey of patients with HAE in the USA to better understand their experiences with available prophylactic medications and the associated treatment burdens. Our survey results suggest that most patients are satisfied with their current therapies but desire novel medications with a simpler route of administration and that, although most patients experience significant treatment-related burdens, they learn to cope with these challenges over time.

Original languageEnglish (US)
Pages (from-to)S4-S10
JournalAllergy and Asthma Proceedings
Issue number3
StatePublished - May 1 2021

All Science Journal Classification (ASJC) codes

  • Immunology and Allergy
  • Pulmonary and Respiratory Medicine


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