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Pediatric Long COVID Subphenotypes: An EHR-based study from the RECOVER program

  • on behalf of the RECOVER Consortium

Research output: Contribution to journalArticlepeer-review

Abstract

Pediatric Long COVID has been associated with a wide variety of symptoms, conditions, and organ systems, but distinct clinical presentations, or subphenotypes, are still being elucidated. In this exploratory analysis, we identified a cohort of pediatric (age <21) patients with evidence of Long COVID and no pre-existing complex chronic conditions using electronic health record data from 38 institutions and used an unsupervised machine learning-based approach to identify subphenotypes. Our method, an extension of the Phe2Vec algorithm, uses tens of thousands of clinical concepts from multiple domains to represent patients’ clinical histories to then identify groups of patients with similar presentations. The results indicate that cardiorespiratory presentations are most common (present in 54% of patients) followed by subphenotypes marked (in decreasing order of frequency) by musculoskeletal pain, neuropsychiatric conditions, gastrointestinal symptoms, headache, and fatigue.

Original languageEnglish (US)
Article numbere0000747
JournalPLOS Digital Health
Volume4
Issue number4 April
DOIs
StatePublished - Apr 2025

All Science Journal Classification (ASJC) codes

  • Health Informatics

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