TY - JOUR
T1 - Potential threats to the effective communication of genetic risk information
T2 - The case of cystic fibrosis
AU - Dillard, James Price
AU - Shen, Lijiang
AU - Laxova, Anita
AU - Farrell, Phillip
N1 - Funding Information:
Preparation of this manuscript was supported by the National Institute on Diabetes, Digestive, and Kidney Diseases and by the National Human Genome Research Institute (R01 DK34108-16).
PY - 2008/5
Y1 - 2008/5
N2 - The dramatic increase in genetic knowledge engendered by the mapping of the human genome brings with it a need for greater understanding of how to effectively communicate genetic risk information. Using a combination of observational and self-report data, this study examined potential threats to effective risk communication in 17 families whose infant received a positive newborn screening test for cystic fibrosis. Five specific problems are identified: (a) copresence of interactants (or the lack thereof), (b) disruptions in the communication environment, (c) variations in parents' initial knowledge, (d) rigidity in counselors' behavioral scripts, and (e) emotional interference with information acquisition. We advance 3 proposals for research aimed at improving our understanding of these potential threats.
AB - The dramatic increase in genetic knowledge engendered by the mapping of the human genome brings with it a need for greater understanding of how to effectively communicate genetic risk information. Using a combination of observational and self-report data, this study examined potential threats to effective risk communication in 17 families whose infant received a positive newborn screening test for cystic fibrosis. Five specific problems are identified: (a) copresence of interactants (or the lack thereof), (b) disruptions in the communication environment, (c) variations in parents' initial knowledge, (d) rigidity in counselors' behavioral scripts, and (e) emotional interference with information acquisition. We advance 3 proposals for research aimed at improving our understanding of these potential threats.
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U2 - 10.1080/10410230802055356
DO - 10.1080/10410230802055356
M3 - Article
C2 - 18569052
AN - SCOPUS:45849141236
SN - 1041-0236
VL - 23
SP - 234
EP - 244
JO - Health Communication
JF - Health Communication
IS - 3
ER -