@article{eb72696b8fde4e99b85e79e2ab1e0d4e,
title = "Preface: promoting research in PLS: current knowledge and future challenges",
author = "\{all Delegates of the PLS Conference\} and Hiroshi Mitsumoto and Turner, \{Martin R.\} and Senda Ajroud-Driss and Patricia Andres and Jinsy Andrews and Gomez, \{Estela Area\} and Atehortua, \{Juan Marcos Solano\} and Suma Babu and Richard Barohn and Peter Bede and Michael Benatar and Sheena Chew and Robin Conwit and Philippe Corcia and Merit Cudkowicz and Frank Davis and Carvalho, \{Mamede de\} and Vivian Drory and Lauren Elman and Pam Factor-Litvak and Fernandes, \{Jose Americo M.\} and Dominic Ferrey and Eoin Finegan and John Fink and Floeter, \{Mary Kay\} and Christina Fournier and Angela Genge and Raghav Govindarajan and Volkan Granit and Georg Haase and Orla Hardiman and Matthew Harms and Ghazala Hayat and Terry Heiman-Patterson and Bryan Hill and Annemarie H{\"u}bers and Edward Huey and Omar Jawdat and Osamu Kano and Kristen Kau and Matthew Kiernan and Yasushi Kisanuki and Jerome Kurent and Justin Kwan and Dale Lange and Albert Ludolph and Ian Mackenzie and Giovanni Manfredi and David Marren and Zachary Simmons",
note = "Funding Information: The first international PLS conference was organized by Teepu Siddique (Northwestern University, USA) in 2004 followed by a UK study day for patients and carers held in 2015 by Martin Turner (University of Oxford, UK). Led by Hiroshi Mitsumoto (Columbia University, NY, USA), several volunteers came together to organize a second international conference on PLS: Nazem Atassi (Sanofi-Genzyme, formerly Mass General Hospital, USA), Lauren B. Elman (University of Pennsylvania, USA), Mary Kay Floeter (National Institute of Neurological Diseases and Stroke-NINDS, USA), Sabrina Paganoni (Massechussetts General Hospital, USA), and Teepu Siddique (Northwestern University, USA). They acquired generous meeting support from NINDS (R13 conference grant), Spastic Paraplegia Foundation (SPF), ALS Association, MND Association, Mitsubishi-Tanabe Pharma, and Biogen Pharmaceuticals. Furthermore, Mr. David Marren and family also provided a kind donation to support this conference. The meeting took place on 3–4 May 2019 in Philadelphia, PA, USA. More than 70 individuals from many countries attended the conference, including patient representatives, advocacy groups, clinicians, and pure scientists. ",
year = "2020",
doi = "10.1080/21678421.2020.1840795",
language = "English (US)",
volume = "21",
pages = "1--2",
journal = "Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration",
issn = "2167-8421",
publisher = "Taylor and Francis Ltd.",
number = "S1",
}