TY - JOUR
T1 - Psychosocial burden in transfusion dependent beta-thalassemia patients and its impact on the quality of life and the problem of dignity
AU - Wangi, Karolus
AU - Birriel, Barbara
AU - Smith, Colin
N1 - Publisher Copyright:
© 2023 [The Author/The Authors]
PY - 2023/12
Y1 - 2023/12
N2 - Beta-thalassemia major is a genetic blood disorder that impacts hemoglobin production with several symptoms that decrease quality of life in patients. Blood transfusions may help them to regulate their hemoglobin needs, though this is a lifelong intervention. Struggling with dependent blood transfusion status impacts patients greatly including their bio, psycho, social, and spiritual health, potentially raising a bioethical issue related to human dignity.
AB - Beta-thalassemia major is a genetic blood disorder that impacts hemoglobin production with several symptoms that decrease quality of life in patients. Blood transfusions may help them to regulate their hemoglobin needs, though this is a lifelong intervention. Struggling with dependent blood transfusion status impacts patients greatly including their bio, psycho, social, and spiritual health, potentially raising a bioethical issue related to human dignity.
UR - http://www.scopus.com/inward/record.url?scp=85159257843&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85159257843&partnerID=8YFLogxK
U2 - 10.1016/j.jtumed.2023.05.002
DO - 10.1016/j.jtumed.2023.05.002
M3 - Letter
C2 - 37250810
AN - SCOPUS:85159257843
SN - 1658-3612
VL - 18
SP - 1217
EP - 1219
JO - Journal of Taibah University Medical Sciences
JF - Journal of Taibah University Medical Sciences
IS - 6
ER -
