Psychosocial burden in transfusion dependent beta-thalassemia patients and its impact on the quality of life and the problem of dignity

Karolus Wangi; Barbara Birriel; Colin Smith

doi:10.1016/j.jtumed.2023.05.002

Psychosocial burden in transfusion dependent beta-thalassemia patients and its impact on the quality of life and the problem of dignity

Karolus Wangi
, Barbara Birriel
, Colin Smith

Ross and Carol Nese College of Nursing

Research output: Contribution to journal › Letter › peer-review

3 Scopus citations

Abstract

Beta-thalassemia major is a genetic blood disorder that impacts hemoglobin production with several symptoms that decrease quality of life in patients. Blood transfusions may help them to regulate their hemoglobin needs, though this is a lifelong intervention. Struggling with dependent blood transfusion status impacts patients greatly including their bio, psycho, social, and spiritual health, potentially raising a bioethical issue related to human dignity.

Original language	English (US)
Pages (from-to)	1217-1219
Number of pages	3
Journal	Journal of Taibah University Medical Sciences
Volume	18
Issue number	6
DOIs	https://doi.org/10.1016/j.jtumed.2023.05.002
State	Published - Dec 2023

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 3 Good Health and Well-being

All Science Journal Classification (ASJC) codes

General Medicine

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10.1016/j.jtumed.2023.05.002

Cite this

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title = "Psychosocial burden in transfusion dependent beta-thalassemia patients and its impact on the quality of life and the problem of dignity",

abstract = "Beta-thalassemia major is a genetic blood disorder that impacts hemoglobin production with several symptoms that decrease quality of life in patients. Blood transfusions may help them to regulate their hemoglobin needs, though this is a lifelong intervention. Struggling with dependent blood transfusion status impacts patients greatly including their bio, psycho, social, and spiritual health, potentially raising a bioethical issue related to human dignity.",

author = "Karolus Wangi and Barbara Birriel and Colin Smith",

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T1 - Psychosocial burden in transfusion dependent beta-thalassemia patients and its impact on the quality of life and the problem of dignity

AU - Wangi, Karolus

AU - Birriel, Barbara

AU - Smith, Colin

PY - 2023/12

Y1 - 2023/12

N2 - Beta-thalassemia major is a genetic blood disorder that impacts hemoglobin production with several symptoms that decrease quality of life in patients. Blood transfusions may help them to regulate their hemoglobin needs, though this is a lifelong intervention. Struggling with dependent blood transfusion status impacts patients greatly including their bio, psycho, social, and spiritual health, potentially raising a bioethical issue related to human dignity.

AB - Beta-thalassemia major is a genetic blood disorder that impacts hemoglobin production with several symptoms that decrease quality of life in patients. Blood transfusions may help them to regulate their hemoglobin needs, though this is a lifelong intervention. Struggling with dependent blood transfusion status impacts patients greatly including their bio, psycho, social, and spiritual health, potentially raising a bioethical issue related to human dignity.

UR - https://www.scopus.com/pages/publications/85159257843

UR - https://www.scopus.com/pages/publications/85159257843#tab=citedBy

U2 - 10.1016/j.jtumed.2023.05.002

DO - 10.1016/j.jtumed.2023.05.002

M3 - Letter

C2 - 37250810

AN - SCOPUS:85159257843

SN - 1658-3612

VL - 18

SP - 1217

EP - 1219

JO - Journal of Taibah University Medical Sciences

JF - Journal of Taibah University Medical Sciences

IS - 6

ER -

Psychosocial burden in transfusion dependent beta-thalassemia patients and its impact on the quality of life and the problem of dignity

Abstract

UN SDGs

All Science Journal Classification (ASJC) codes

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