Sociodemographic Characteristics of Patients Seen at Vascular Anomaly Centers in the United States

Bryan A. Sisk; Whitney Eng; Jamie Aye; Joana Mack; Andrew Tran; Jayme Ogino; Erika Pearson; Joshua Bies; Gayle Smink; Sonal D. Shah; Lindsey Mohney; Hannah Fassel; Rachael Schulte; Vivian Y. Chang; Renae A. Tessem; Marcia Hogeling; Neeraja Swaminathan; Thomas W. McLean; Julie Blatt; Sara Alturky; Melinda Wu; Autumn Atkinson; Ahmad Al-Huniti; Gita Massey; Elissa Engel; Kiersten Ricci; Tyson Echols; Sumukh Kumar; Michael Fox; Katherine A. King

doi:10.1002/pbc.31661

Sociodemographic Characteristics of Patients Seen at Vascular Anomaly Centers in the United States

Bryan A. Sisk, Whitney Eng, Jamie Aye, Joana Mack, Andrew Tran, Jayme Ogino, Erika Pearson, Joshua Bies, Gayle Smink, Sonal D. Shah, Lindsey Mohney, Hannah Fassel, Rachael Schulte, Vivian Y. Chang, Renae A. Tessem, Marcia Hogeling, Neeraja Swaminathan, Thomas W. McLean, Julie Blatt, Sara AlturkyMelinda Wu, Autumn Atkinson, Ahmad Al-Huniti, Gita Massey, Elissa Engel, Kiersten Ricci, Tyson Echols, Sumukh Kumar, Michael Fox, Katherine A. King

Research output: Contribution to journal › Article › peer-review

Abstract

Patients with vascular anomalies (VAs) require expert multidisciplinary care. No prior studies have characterized the sociodemographic characteristics across multiple VA centers. We collected data on 5783 patients receiving care at 20 VA centers between July 1, 2020 through December 31, 2022. Male patients were underrepresented compared to the state-level census data at 17/20 centers. Black and Asian patients were underrepresented at 14/20 and 12/20 centers, respectively. The median distance to the hospital was 48 miles, and median age was 12.0 years. These data suggest that race, sex, age, and distance from the hospital could impede the ability to access expert VA care.

Original language	English (US)
Article number	e31661
Journal	Pediatric Blood and Cancer
Volume	72
Issue number	6
DOIs	https://doi.org/10.1002/pbc.31661
State	Published - Jun 2025

All Science Journal Classification (ASJC) codes

Pediatrics, Perinatology, and Child Health
Hematology
Oncology

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Sisk, B. A., Eng, W., Aye, J., Mack, J., Tran, A., Ogino, J., Pearson, E., Bies, J., Smink, G., Shah, S. D., Mohney, L., Fassel, H., Schulte, R., Chang, V. Y., Tessem, R. A., Hogeling, M., Swaminathan, N., McLean, T. W., Blatt, J., ... King, K. A. (2025). Sociodemographic Characteristics of Patients Seen at Vascular Anomaly Centers in the United States. Pediatric Blood and Cancer, 72(6), Article e31661. https://doi.org/10.1002/pbc.31661

@article{4528a62fd17a4ff581f9affc0e6843c7,

title = "Sociodemographic Characteristics of Patients Seen at Vascular Anomaly Centers in the United States",

abstract = "Patients with vascular anomalies (VAs) require expert multidisciplinary care. No prior studies have characterized the sociodemographic characteristics across multiple VA centers. We collected data on 5783 patients receiving care at 20 VA centers between July 1, 2020 through December 31, 2022. Male patients were underrepresented compared to the state-level census data at 17/20 centers. Black and Asian patients were underrepresented at 14/20 and 12/20 centers, respectively. The median distance to the hospital was 48 miles, and median age was 12.0 years. These data suggest that race, sex, age, and distance from the hospital could impede the ability to access expert VA care.",

author = "Sisk, {Bryan A.} and Whitney Eng and Jamie Aye and Joana Mack and Andrew Tran and Jayme Ogino and Erika Pearson and Joshua Bies and Gayle Smink and Shah, {Sonal D.} and Lindsey Mohney and Hannah Fassel and Rachael Schulte and Chang, {Vivian Y.} and Tessem, {Renae A.} and Marcia Hogeling and Neeraja Swaminathan and McLean, {Thomas W.} and Julie Blatt and Sara Alturky and Melinda Wu and Autumn Atkinson and Ahmad Al-Huniti and Gita Massey and Elissa Engel and Kiersten Ricci and Tyson Echols and Sumukh Kumar and Michael Fox and King, {Katherine A.}",

note = "Publisher Copyright: {\textcopyright} 2025 Wiley Periodicals LLC.",

year = "2025",

month = jun,

doi = "10.1002/pbc.31661",

language = "English (US)",

volume = "72",

journal = "Pediatric Blood and Cancer",

issn = "1545-5009",

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Sisk, BA, Eng, W, Aye, J, Mack, J, Tran, A, Ogino, J, Pearson, E, Bies, J, Smink, G, Shah, SD, Mohney, L, Fassel, H, Schulte, R, Chang, VY, Tessem, RA, Hogeling, M, Swaminathan, N, McLean, TW, Blatt, J, Alturky, S, Wu, M, Atkinson, A, Al-Huniti, A, Massey, G, Engel, E, Ricci, K, Echols, T, Kumar, S, Fox, M & King, KA 2025, 'Sociodemographic Characteristics of Patients Seen at Vascular Anomaly Centers in the United States', Pediatric Blood and Cancer, vol. 72, no. 6, e31661. https://doi.org/10.1002/pbc.31661

TY - JOUR

T1 - Sociodemographic Characteristics of Patients Seen at Vascular Anomaly Centers in the United States

AU - Sisk, Bryan A.

AU - Eng, Whitney

AU - Aye, Jamie

AU - Mack, Joana

AU - Tran, Andrew

AU - Ogino, Jayme

AU - Pearson, Erika

AU - Bies, Joshua

AU - Smink, Gayle

AU - Shah, Sonal D.

AU - Mohney, Lindsey

AU - Fassel, Hannah

AU - Schulte, Rachael

AU - Chang, Vivian Y.

AU - Tessem, Renae A.

AU - Hogeling, Marcia

AU - Swaminathan, Neeraja

AU - McLean, Thomas W.

AU - Blatt, Julie

AU - Alturky, Sara

AU - Wu, Melinda

AU - Atkinson, Autumn

AU - Al-Huniti, Ahmad

AU - Massey, Gita

AU - Engel, Elissa

AU - Ricci, Kiersten

AU - Echols, Tyson

AU - Kumar, Sumukh

AU - Fox, Michael

AU - King, Katherine A.

PY - 2025/6

Y1 - 2025/6

N2 - Patients with vascular anomalies (VAs) require expert multidisciplinary care. No prior studies have characterized the sociodemographic characteristics across multiple VA centers. We collected data on 5783 patients receiving care at 20 VA centers between July 1, 2020 through December 31, 2022. Male patients were underrepresented compared to the state-level census data at 17/20 centers. Black and Asian patients were underrepresented at 14/20 and 12/20 centers, respectively. The median distance to the hospital was 48 miles, and median age was 12.0 years. These data suggest that race, sex, age, and distance from the hospital could impede the ability to access expert VA care.

AB - Patients with vascular anomalies (VAs) require expert multidisciplinary care. No prior studies have characterized the sociodemographic characteristics across multiple VA centers. We collected data on 5783 patients receiving care at 20 VA centers between July 1, 2020 through December 31, 2022. Male patients were underrepresented compared to the state-level census data at 17/20 centers. Black and Asian patients were underrepresented at 14/20 and 12/20 centers, respectively. The median distance to the hospital was 48 miles, and median age was 12.0 years. These data suggest that race, sex, age, and distance from the hospital could impede the ability to access expert VA care.

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M3 - Article

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AN - SCOPUS:105000072577

SN - 1545-5009

VL - 72

JO - Pediatric Blood and Cancer

JF - Pediatric Blood and Cancer

IS - 6

M1 - e31661

ER -

Sociodemographic Characteristics of Patients Seen at Vascular Anomaly Centers in the United States

Abstract

All Science Journal Classification (ASJC) codes

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