TY - JOUR
T1 - Too soon to give up
T2 - Re-examining the value of advance directives
AU - Levi, Benjamin
AU - Green, Michael
N1 - Funding Information:
Acknowledgments: The project described was supported by grant 1 R21 NR008539 from National Institute of Nursing Research, National Institutes of Health. Its contents are solely the responsibility of the author and do not necessarily represent the official views of the National Institute of Nursing Research or the National Institutes of Health. The project also received support from the American Cancer Society (grant RSGHP-08-005-01-CPHPS), and various funding from Penn State University (the Social Science Research Institute, the Woodward Endowment for Medical Science Education, and the Tobacco Settlement Fund Award). The author acknowledges the support and assistance of Dr. William Lawrence for his contribution to the MAUT model used in this program, Dr. Cheryl Dellasega for her leadership in focus-group activities, Charles Sabatino for his review of legal aspects of the program, Dr. Robert Pearlman and his collaborative team for use of the advance care planning booklet “Your Life, Your Choices,” Joanne Caulfield for assistance in grant preparation and project organization, and the Instructional Media Development Center at the University of Wisconsin as well as JPL Integrated Communications for production and programming of the decision aid. Address correspondence to Benjamin H. Levi, Penn State College of Medicine, Humanities & Pediatrics, 500 University Drive, Hershey, PA 17033, USA. E-mail: [email protected]
PY - 2010/4
Y1 - 2010/4
N2 - In the face of mounting criticism against advance directives, we describe how a novel, computer-based decision aid addresses some of these important concerns. This decision aid, Making Your Wishes Known: Planning Your Medical Future, translates an individual's values and goals into a meaningful advance directive that explicitly reflects their healthcare wishes and outlines a plan for how they wish to be treated. It does this by (1) educating users about advance care planning; (2) helping individuals identify, clarify, and prioritize factors that influence their decision-making about future medical conditions; (3) explaining common end-of-life medical conditions and life-sustaining treatment; (4) helping users articulate a coherent set of wishes with regard to advance care planning-in the form of an advance directive readily interpretable by physicians; and (5) helping individuals both choose a spokesperson, and prepare to engage family, friends, and health care providers in discussions about advance care planning.
AB - In the face of mounting criticism against advance directives, we describe how a novel, computer-based decision aid addresses some of these important concerns. This decision aid, Making Your Wishes Known: Planning Your Medical Future, translates an individual's values and goals into a meaningful advance directive that explicitly reflects their healthcare wishes and outlines a plan for how they wish to be treated. It does this by (1) educating users about advance care planning; (2) helping individuals identify, clarify, and prioritize factors that influence their decision-making about future medical conditions; (3) explaining common end-of-life medical conditions and life-sustaining treatment; (4) helping users articulate a coherent set of wishes with regard to advance care planning-in the form of an advance directive readily interpretable by physicians; and (5) helping individuals both choose a spokesperson, and prepare to engage family, friends, and health care providers in discussions about advance care planning.
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U2 - 10.1080/15265161003599691
DO - 10.1080/15265161003599691
M3 - Article
C2 - 20379910
AN - SCOPUS:77951082247
SN - 1526-5161
VL - 10
SP - 3
EP - 22
JO - American Journal of Bioethics
JF - American Journal of Bioethics
IS - 4
ER -
