| Original language | English (US) |
|---|---|
| Pages (from-to) | 226-231.e1 |
| Journal | Journal of Pediatrics |
| Volume | 168 |
| DOIs |
|
| State | Published - Jan 1 2016 |
All Science Journal Classification (ASJC) codes
- Pediatrics, Perinatology, and Child Health
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In: Journal of Pediatrics, Vol. 168, 01.01.2016, p. 226-231.e1.
Research output: Contribution to journal › Comment/debate › peer-review
TY - JOUR
T1 - When Participants in Genomic Research Grow Up
T2 - Contact and Consent at the Age of Majority
AU - Pediatrics Workgroup of the Clinical Sequencing Exploratory Research (CSER) Consortium
AU - Consent, Education, Regulation, and Consultation Workgroup of the Electronic Medical Records and Genomics (eMERGE) Network
AU - Brothers, Kyle B.
AU - Holm, Ingrid A.
AU - Childerhose, Janet E.
AU - Antommaria, Armand H.M.
AU - Bernhardt, Barbara A.
AU - Clayton, Ellen Wright
AU - Gelb, Bruce D.
AU - Joffe, Steven
AU - Lynch, John A.
AU - McCormick, Jennifer B.
AU - McCullough, Laurence B.
AU - Parsons, D. Williams
AU - Sundaresan, Agnes S.
AU - Wolf, Wendy A.
AU - Yu, Joon Ho
AU - Wilfond, Benjamin S.
AU - Berkman, Benjamin E.
AU - Biesecker, Leslie G.
AU - Hull, Sara C.
AU - Biswas, Sawona
AU - Chung, Wendy K.
AU - Koenig, Barbara
AU - Lehmann, Lisa S.
AU - Lewis, Michelle
AU - McGuire, Amy L.
AU - Slashinski, Melody J.
AU - Ross, Lainie F.
AU - Salama, Joseph S.
AU - Skinner, Debra
AU - Tabor, Holly K.
AU - Wolf, Susan M.
AU - Perry, Cassandra
AU - Chandler, Ariel
AU - Cobb, Beth
AU - Harley, John
AU - Myers, Melanie
AU - Chiavacci, Rosetta
AU - Connolly, John
AU - Faucett, Andy
AU - Fetterolf, Samantha
AU - Ledbetter, David
AU - Williams, Janet
AU - Ehrlich, Kelly
AU - Fullerton, Malia
AU - Hansen, Kelly
AU - Hartzler, Andrea
AU - Scrol, Aaron
AU - Carruth, Lucy
AU - Chau, Elizabeth
AU - Chute, Chris
N1 - Funding Information: The CSER Consortium is funded by National Human Genome Research Institute and National Cancer Institute (U01 HG006485 [Baylor College of Medicine], U01 HG006500 [Brigham and Women's Hospital], U01 HG006546 [Children's Hospital of Philadelphia], U01 HG006492 [Dana-Farber Cancer Institute], UM1 HG007301 [HudsonAlpha Institute], UM1 HG007292 [Kaiser Permanente], UM1 HG006508 [University of Michigan], U01 HG006487 [University of North Carolina], U01 HG006507 [University of Washington], R01 HG006615 [Boston Children's Hospital], R21 HG006596 [Columbia University], R01 HG006600 [Columbia University], R21 HG006613 [Children's Mercy Hospital], R21 HG006594 [Johns Hopkins University], R01 HG004500 [Mayo Clinic], R01 HG006618 [Seattle Children's Hospital], R01 CA154517 [UC - San Francisco, Mayo College of Medicine, and University of Minnesota], R21 HG006612 [Vanderbilt University and McGill University], U01 HG007307 [University of Washington serving as the Coordinating Center]). The eMERGE Network was initiated and funded by the National Human Genome Research Institute (U01HG006828 [Cincinnati Children's Hospital Medical Center/Boston Children's Hospital], U01HG006830 [Children's Hospital of Philadelphia], U01HG006389 [Essentia Institute of Rural Health], U01HG006382 [Geisinger Clinic], U01HG006375 [Group Health Cooperative/University of Washington], U01HG006379 [Mayo Clinic], U01HG006380 [Icahn School of Medicine at Mount Sinai], U01HG006388 [Northwestern University], U01HG006378 [Vanderbilt University Medical Center], and U01HG006385 [Vanderbilt University Medical Center serving as the Coordinating Center]). Funding Information: The authors would like to thank the coordinating centers of the CSER Consortium (University of Washington) and eMERGE Network (Vanderbilt University) for their support. We would like to thank Joseph Salama (University of Washington) and Mollie Bodin Claar (Vanderbilt University) who provided substantive support for this effort. Jean McEwen, JD, PhD, Joy Boyer, Nicole Lockhart, PhD, and Lucia Hindorff, PhD, MPH, all with the National Human Genome Research Institute (NHGRI), provided program staff support for this project.
PY - 2016/1/1
Y1 - 2016/1/1
UR - https://www.scopus.com/pages/publications/84955636933
UR - https://www.scopus.com/pages/publications/84955636933#tab=citedBy
U2 - 10.1016/j.jpeds.2015.09.020
DO - 10.1016/j.jpeds.2015.09.020
M3 - Comment/debate
C2 - 26477867
AN - SCOPUS:84955636933
SN - 0022-3476
VL - 168
SP - 226-231.e1
JO - Journal of Pediatrics
JF - Journal of Pediatrics
ER -